Ehlers-Danlos Syndrome

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Acceptability at Recruitment

NOT ACCEPTABLE

Acceptability at CT / Work-Up

NOT ACCEPTABLE

Individual at Risk

Donor

Explanation of Condition

Inherited disorder of connective tissue (collagen) formation, leading to laxity of the joints. Some sufferers may also have other problems, such as a bleeding tendency.

Guidance

Excessive risk of bleeding with both bone marrow harvest and PBSC. Donor risk is unacceptable.

Pseudonyms or Related Conditions

Version

Version 1, Edition 1

Date of Last Update

15th June 2012